July 27, 2011

What a day, yesterday! We woke up really early to make sure we got Kassidy's treatment going before we had to leave for our appointment with the new oncologist.  The new oncologist that had signed the 1572 form that was required by FDA before and then the next day wrote a letter to Dr. Weaver in Houston recanting his story and wanted his name removed from all the paperwork.  We were a little apprehensive to go meet with him for the first time, but we feel Kass should have an oncologist here in Las Vegas as well, just in case we will need him in the future, since our first oncologist here in Vegas no longer wants Kassidy as a patient.  We found this out the beginning of this week when Make a Wish called us to let us know the reason there had been a delay on her wish was because her first oncologist no longer claimed her as a patient and he wouldn't signed the paperwork, when he had told Ryan that even if we chose another treatment plan that he would help us with the Make a Wish.  Wow!  We will definitely never be going back to him or refer him in any way.

We got called back pretty soon after filling out all the required paperwork, which by the way we are getting pretty good at.  I can't tell you how many of those papers we have filled out in the last couple of months.  We sat in the exam room for about an hour and half and then we started to feel a little antsy. At the same time Ryan was ready to go to the front office to ask if they had forgotten us, we heard arguing in the hallway directly in front of our door.  There were some choice words exchanged by the doctor we were seeing and a staff member.  We got from the argument that he was not so happy that we were there, since he had already refused to be the onsite doctor that would work along with the Burzynski Clinic.  At that time, I told Ryan and Kass that I would give the doctor 10 minutes to come in the door and if he hadn't I would ask for my $20 copay back and walk out the door.  My patience was running thin.  Ryan after the 10 minutes stood outside the door and saw the doctor that then informed us he would be in 5 minutes.

When he walked in the door he proceeded to ask Kassidy's medical history with a bit of frustration in his tone.  That's when I chimed in and told him we were here because his staff had called us that he wanted to meet with us, but we had already found an MD here in Vegas that would oversee Kass every month for her physicals and signed the 1572 form.  That all we needed him for was to be Kass' oncologist here in Vegas just in case we would need him in the future.  He then seemed to relax and agreed that there is really no conventional treatment that works on any certain person for this type of disease and that Kass is doing well and right now its probably the best time to try something out of the box that's non toxic and see if it works. That he would like to see Kass after her MRI just to keep an eye on her.  We left the office in bettter spirits and surprised by the change of heart, but glad to have a new oncologist who will support us through this treatment.  Thank you God! Another answered prayer.

Macayos gave Kass her own name tag! :)

Later that evening we decided to go to Macayos Mexican Restaurant to take part in the Kassidy's Army fundraiser night.  My goodness, the restaurant was filled with friends, family and people supporting Kass we have never met.  It was an overwhelming site to see! We sure feel loved, THANK YOU ALL.  We tried to greet everyone at their tables to thank them and hope we did not miss any of you.  What an amazing night, so great we ran Macayos out of rice.  LOL!

Our table at dinner with great friends.