September 27, 2011

She made it though her first day back to school! Yes!  Thank you God.  Ryan and I were so worried how she would do the first day.  Not only through the 3 hours of class time, but driving herself for the first time.  We practiced all weekend back and forth to school and back so on Monday morning with extreme hesitation I let her drive herself to school for the first time.  Oh man just like with Kyle, I was a ball of nerves and demanded a text letting me know she arrived.  All was good and she did great.

As she pulled out all I could do was pray! LOL

When she got home she crashed for a couple hours, but was able to get up and study a bit with Ms. Macioce, our friend, and Kassidy's tutor.  We were fortunate to get Ms. Macioce approved through Supplementary Services through Clark County School District.  So if Kass misses more than 2 days in a row she is able to get paid for tutoring Kass.  Kass was able to work for about 50 minutes but then tired, but we will try again this week to catch her up.  So far so good though!

After school on Monday, out for 4 hours..

On Saturday we had gotten a surprise in the mail for Kass, but I wanted to wait for Ryan to help me give it to her on Monday evening.  A couple months ago I had filled out an application for www.journey4acure.org for a free ipad2 for children with cancer.  My friend Maureen, who I met in Houston had told me about these three organizations that are working together to help children with disabilities and cancer to give them a gift of an ipad to just make their lives easier and bring them joy.  What an amazing cause!  Well Kass was one of the ones chosen.  Pretty cool right!  We wrapped it up in a gift and she was so excited to get it.  It has been rough for her lately and it's sure good to see her get such a great gift.  We are honored!  Thank you Journey4acure!

Please check out and support these amazing organizations:

www.journey4acure.org

www.ipads4cancer.com

www.a4cwsn.com

Thank you Journey 4 a cure for making our girl smile!

 Today, I had the opportunity to go on Channel 13 with Christina Luzod, the Livestrong representative of Las Vegas, to speak about this Saturday's ride and tell a bit about Kass.  I was so nervous, but pulled through it.  I hope we get a great turnout at this year's ride.  It's a great cause and now very close to my heart.  All of us will be there on Saturday in our own booth.  Come see us we will have great raffle prizes, Kassidy Army bracelets and t-shirts.

The link to register is:  www.lasvegascancerfoundation.org

Still need volunteers for the Livestrong Ride, Thursday & Friday for packet pickup and the day of the ride form 9:30am to 1pm.  Email me at: ryanandmass@aol.com

The link to Channel 13 News Interview: http://www.ktnv.com/multimedia/videos/?bcpid=991773990001&bckey=AQ~~,AAAAAyz2bGk~,Zn96CuMjjKOIu-_k6JUacSsNpS9uCNWc&bctid=1185475758001

I did get a call from Dr Acelar at the Burzynski Clinic saying that Dr. Burzynski would like to do a pet scan on Kass.  The MRI did show signs of maybe a new lesion on the right side which could be caused by the tumor itself.  Which I was told about the day of the great news, but I chose to celebrate the good news first.  The pet scan would rule out if it's an active site or not.  Please pray that it's not!

Also, Dr. Rhee, gastro doctor wants to do an endoscopy on Kass because her test she had done last week came out pretty normal and he wants to rule out ulcer or gastritis.  He would like to get to the bottom of the stomach issues.  Her tests from last week only showed a bit of elevated white blood cells and borderline irritation, but nothing serious so he thinks the endoscopy will help determine if the steroids are causing havoc in her stomach.  Ahhh never a dull moment! Sure keeps us on our toes.

I can't help sometimes think how last year some problems seemed so big.  But now those problems are just things I would brush off my shoulders these days.  This experience has definitely shown us what is important in life.  Some things just do not even matter anymore, they are just secondary issues that can be solved or just plainly overlooked.

Life is one big road with many signs. So when your riding through the ruts, don’t complicate your mind. Flee from hate, mischief and jealousy. Don’t bury your thoughts, instead put your vision to reality. Wake up and live.

Author Unknown